Tuesday 15 February 2022

Pregnancy Awareness Week - The Preemiehood Story

This week in South Africa we are celebrating Pregnancy Awareness Week. 

Birth trauma is real and is something that needs to be highlighted and an issue that needs to be  fixed globally. 

A few years ago when I became a preemie mom I found this awesome page called Preemiehood. It has the most awesome preemie content.

I always wondered who was behind the creation of this beautiful page and what their story was because every, single post seems to speak directly to me.

So I got in touch with the creator/founder and found out that Sarah Zellner is the lady behind the name. And what a rollercoaster she has been on having had not 1,not 2, not 3... but 4 preemies!!!

Sarah was kind enough to give us a glimpse into her first experience of becoming a preemie mom. 

Here is the post told in her words.

Do check out her page @preemiehood



XOXO, T


Preemiehood By: Sarah Zellner 


I have given birth to four premature baby boys. 

My first pregnancy was certainly my most traumatic. I had repressed most of it, and it took years to slowly come back. The day I found out I was pregnant, my [now] ex husband was arrested for domestic violence. 

At my first appointment, I was told my son had a SUA. Single umbilical artery, and he was measuring small. I was put on high risk care. Following that, I had quite a few trips to L&D due to high blood pressure I assumed was solely from anxiety. It was partly, but I was also diagnosed with early onset severe preeclampsia in the middle/end of my second trimester. The two combined were restricting growth and I heard the term, “IUGR” used for the first time. “Now try not to stress about any of this, you have enough stress and everything you feel is x10 for your baby.” Really, Doc? 

My son didn’t move much, I could actually feel how tight my stomach muscles were, like they were squeezing him. They recommended an amnio. While I am being prepped, they tell me my son has trisomy 18 and they need to see the extent of it, my mind is blown. The nurse then tells me not to worry, she had a tubal pregnancy recently and “Losing a baby isn’t as hard as people make it seem,” I will be able to have more. Those words cut into my mind, and they will always be there.

I waited 72 hours in pure agony not knowing the outcome of the tests. When they did come back, they showed nothing wrong with Jaxson. “He is lying, funny is all.” It went from, “I am going to lose this child” to him just lying funny, just like that, like nobody's real feelings were even taken into account. 

I continue to go in three times a week for stress tests, every single week for labs, and every single week for 24 hour urines. At 30 weeks I was admitted and I was told, “You are not leaving until your baby is born, if you do, he WILL die.”

My blood pressure was out of control and I was spilling protein like it was my job. “Let’s do another amnio, we need to see how his lungs are doing, we may need to take him sooner than later.” 

I begged them not to do it, but it got me nowhere. They went ahead with it, and the second that needle went in, I went into labor. Everything around me started spinning, I thought I was going to be sick, and they were prepping for my son to come out. I don’t really even know how this is possible, babies can’t survive if they are born early. You read that correctly. I had NO idea that my son could be born early and live. I never knew anyone who had a preemie, and all this time in and out of appointments and procedures, not one single person told me about premature babies or the NICU. 

I continue to be monitored until the day they walk in and say, “We are going to induce labor today.” For sixteen hours I sat there and I did not dilate at all. Just a few contractions.. Finally falling asleep I awoke at 2:30 a.m. to nurses telling me I needed to flip over on all fours. Jaxson had stopped breathing and they were taking him out.

They put me under and I could not breathe. I had been tied down, and the last thing I remember was thinking, “I am going to die.” 

When I awoke from surgery I was back in my room. A nurse walked in and said, “Good you’re up, we need to press on your stomach.” I never had a baby, I had no idea what this meant. She proceeded to get on the bed and straddle me. She took both her hands and pressed with all of her force, again and again on my stomach until I was screaming and crying in pain begging her to stop. “I will stop for now, I will be back later to finish though so you better toughen up. 

Now, if you want to see your baby, he is in the NICU and to get there, you need to walk. Once the mag is done you can go.” That was the first time she mentioned my baby was even alive. I had no idea how much he weighed, no idea how he was doing, and no idea where the NICU even was. 

I was in so much pain and it just continued to get worse. I was straddled two more times within about 90 minutes, each time, more and more blood left my body. By the time they told me I could get up and walk to go see my son, I couldn’t hold up my body. “Well until you can walk you can’t go see him, you might want to try harder.” 

So I did, and I passed out on the floor. My doctor didn’t come in until the next day, she had labs run immediately and thank God she did. I was just a few hours away from death. I then received several blood transfusions, and got a wheelchair to go to the NICU and see my son, 48 hours after he was born.

 I cannot tell you why or what exactly happened, but something had gone terribly wrong. During my c section, I did suffer from a lack of oxygen, when I said I couldn’t breathe, I really couldn’t, it’s called hypoxemia. I had developed eclampsia which caused me to seizure, and I hemorrhaged on the operating table.

Meanwhile, my son was born blue, he was non-responsive. Both of us nearly died that day. I had to read all of this in my and my son's medical file. Nobody ever told me what happened that day in words.

Today, my son is fourteen. He has no lasting effects from his birth issues. He is an amazing old soul. We have an incredible bond. I suffer from PTSD surrounding this event, and while I tried, words will never do justice to the emotional toll this took on me just to write it out. 

Monday 10 January 2022

New Year, New Energy

 I cannot  believe that it has been so long since I last did a post.

But in all honesty, life happened. And I know you can all appreciate that especially with us being in a pandemic for nearly 2 years now.

My family has grown and I am now the mom to 3 boys!! I left my job and have decided to concentrate on my Non-Profit Company full time. 

As you guys would've noticed having my second baby being born prematurely really changed the  course of my life (but in a good way). And it lead me to starting my NPC which has open so many doors and lead me to do some remarkable, life-changing things. 

I never dreamt that this would've been the direction in which my life would've headed in but I am so grateful that this is the path that I am on. 

It's been scary and such a rollercoaster but I'm enjoying every moment of it.

Prematurity (as you have and will see on this blog) is a big part of who I am now. So I appologise in advance for all the content coming your way, but hey that's why the title is Life,Luv and Everything because here we discuss it all.

2021 saw me in a bit of an emotional slump and I decided that this year we are keeping up the energy. Infact I even have adopted the song "Energy" by Tyla Jane  as my motto for this year:

"And it's all because I'm working on my energy.
Cleaning up, I'm taking care of  I, myself and me.
Drinking coffee, take a sip they say I'm sparkling.
Manifest that, Write it Down, you know it's happening."



So here's to a spectacular 2022 (and many more blog posts)

XOXO, T

Thursday 5 September 2019

Preemie Diaries - Meghan and Blaise's Story, on his second birthday

So I know most of my posts have been preemie related over the past 2 years, but I just can't help it. Prematurity has become a huge part of me.

So I hope you stay and walk this journey with me, because Prematurity continues to amaze me. It has taken me on the craziest, most rewarding ride of my life and along the way I've met many phenomenal people.

Today I introduce you to Meghan and Blaise. We have been brought together through (you guessed it),Prematurity.

I'm always in awe of where they started and how far they've come.

Below please find their journey, as told by Meghan.

I had wished for a baby and had tried for over a year to conceive and when my turn finally came around there wasn't a happier mother to be around.


At 18 weeks gestation I went for the routine abnormality blood tests that came back with a chance of spina bifia, my gynecologist sent me to a fetal specialist for a full fetal scan, that's when we found out we were expecting a little boy, Blaise, and he was perfect.

He was thriving and had absolutely no signs of spina bifia. We went on like normal - going for our monthly scans, eating right, drinking my water and taking my vitamins.

29 weeks came along and I can remember as clear as day, it was a Friday, and I had my check up with my gynecologist who was going on leave and I was relieved to know that he then wouldn't be on leave around my due date.

However during my scan he asked alot of questions about Blaise's movements and what they felt like. I had very little amniotic fluid left, I did not leak - I went to antenatal classes so I knew what to look and smell for.

My gynecologist sent me back to the fetal specialist to scan and advise if there was enough fluid to carry Blaise longer.

As it was a Friday afternoon he was already closed for the weekend so I was put on strict bed rest.

Monday morning I called for an urgent appointment and I was told that Dr is very busy he could only see me the following week. I told the receptionist that I couldn't wait that long I need to see him today I would even sit and wait for a spot.

I rushed over to the hospital, which was quite a distance from Alberton, where I stay. During my scan the Dr was very quiet, the occasional "ummm", "aaaah". We listened to Blaise's heartbeat over and over and it was strong but Blaise had stopped growing due to the lack of water.

On the scan he weighed a mere 800g.

Now my gynecologist was on leave, like gone out of the country, leave. I was sent to the Dr on call, when I got to another hospital I went straight to the maternity ward where I was strapped up to monitors and started a course of steroids.

Blaise didn't have enough water to wait another week.

The gynecologist on call had decided to deliver Blaise at 30 weeks on the Wednesday, he organized a bed in the NICU for Blaise and got the neonatologist up to date.

At 2 o'clock on Tuesday morning just before my next dose of steroids Blaise's heart beat became irregular. The gynecologist was called in and I was prepped for an emergency c section.

Blaise was born at 3:47 weighing a whole lot less then we expected. At a staggering 580g and 29cm tall, classified as a micro preemie, with a 15% chance of survival!



He was given oxygen and rushed to the NICU. At the stage I was in severe shock that I simply couldn't get a word out, I couldn't even ask if my baby was OK, I didn't even get to see him.

Blaise spent 84 days in the NICU. He was a strong little man, he fought his Cpap after a day but remained on oxygen.

He didn't have any infections but his tummy was too immature for feeds. He rejected the donor milk and was left on vein feeds for a few days until his tummy settled.

Once he got my breastmilk he managed OK. He got a total of four blood transfusions, one during a growth spurt. Can you imagine the hunger he felt not being able to get a feed in for 6 hours before the blood was administered?

He never got an infection and he was simply there to grow.



Blaise was released from the NICU weighing 2.3kg a far way from his 580g he was born at. He is now a healthy happy 2 year old little boy full of adventure and smiles.

While it hasn't been a walk in the park its been worth it and I'm grateful that God believed I was the best mom for Blaise, because I couldn't imagine my life without him.

If you haven't been in a NICU before you don't know the faith that lives in there. Miracles do happen and I've seen it in there, not just with Blaise but with many other babies that went through the NICU while we were there.

I give thanks to Dr Mnisi and the nurses at the Netcare Clinton for their healing miracle work they do every day.

"Being the parent of a preemie, means you're extra special. After all God doesn't just pick anybody to witness a miracle."






Xoxo
T













Wednesday 3 July 2019

Preemie Diaries - South Africa's youngest surviving preemie goes home.


On the 9th of April 2019, Samantha Nyweba, spontaneously went into labour. She was rushed to Bertha Gxowa Hospital, east of Johannesburg. There she was told that she was having a miscarriage.

She ended up giving birth at only 21 weeks, to a baby girl, Anathi Nyweba,  who weighed just 680 grams at birth.



On the 2 July 2019, after spending 84 days in the NICU, baby Anathi finally got to go home.


"I first got to meet Samantha and Anathi when my organisation Preemie Connect went to Bertha Gxowa Hospital to gift the preemie parents with a goodie bag filled with essentials and also to give them hope and encouragement. 

With me being a preemie mother myself, I know first hand how hard and sometimes lonely the premature journey can be. Having support through the NICU journey is great but it's once you leave the safety net of the hospital that you really require support.

Preemie Connect plans to be there throughout this journey alongside Samantha and Anathi. "

Anathi is a miracle baby and the youngest surviving premature baby in South Africa. (by gestation).

Her story gives hope for all other babies, born this soon, especially in Africa.

We wish both mommy and baby all the best as they get to finally go home.

We are also so grateful and appreciative of the hard work and support that the staff of Bertha Gxowa Hospital have given.


With love,

Tasmin
Preemie Connect

Sunday 7 April 2019

Preemie Diaries - Happy Second Birthday


Can you believe my Preemie has just turned 2? Neither can I! I never thought we'd make it to day 2 let, alone 2 whole years. And although the second year of life has come with its own trials and tribulations, I am so thankful that we have been lucky enough to reach this great milestone.

This journey has been the most remarkable of my life. Yes it has been hard. Yes it has been uncertain and yes its been a roller-coaster. But it's also been filled with so many magical moments. Moments I took for granted the first time I became a mom.
You see we are so busy just trying to get through each day that we really do take for granted the simple things.

A cry: I remember my first born suffered from colic (as a new mother back then, I didn't know it.) And it drove me insane!! But now I appreciate that sound. You see my Preemie was intubated for a while so I could not hear him cry in the beginning. And the first time I did, it was truly music to my ears.

Holding up his neck on his own: This mile stone, took what seemed like forever to do, but the first time he did, was magic. Something so simple, filled me with awe.

Solids: This has been 1 of the tougher parts of prematurity for us. Soft foods were easy peasy but we struggled with lumpier foods, struggled to learn how to chew. And so we had to see a speech therapist. And we have basically mastered it now. Some days are still harder than others but every time we are able to eat a whole "big boy" meal, it's still a win.

Sitting on our own: He conquered that like a champ and I thought everything else would be just as quick and simple. But as prematurity has it, some things take a little more time and patience.

Talking: He was always been ahead in this regard. He started babbling after a few weeks of being home. He said his first word at 5 months old and ever since then he has just been making strides. He's now forming sentences.

Crawling: This 1 hit us for a 6. My little one didn't crawl for the longest time. In fact we had to go for physical therapy for this. He army crawled for months and the therapist told me he would never crawl on all 4s. Well he sure showed us! At 15 months he started crawling on all 4s.

Walking: This 1 has been the hardest of the milestones to reach. And believe it or not we are still trying to reach that goal, at 2 years old. On the positive side he loves walking while we hold his hands. He can walk and walk and walk like this for hours. And just very recently (in the past week actually) he took his first 2 independent steps. For some this is just the norm but to a preemie parent this is 1 of the greatest achievements ever.

Yes, this second year has been filled with even more appointments. From speech therapy, to occupational therapy, to physical therapy and of course our neonatal follow ups. But I just look at it as our Preemie family extending. Afterall, it takes a village.

I look at my baby boy (although technically he isn't a baby any more) and I am in awe. I am so, so grateful. More grateful than I have ever been for anything in my life. God chose little old me to bare witness to a miracle. And I get to witness it every, single day.

God has made me appreciate all the small things. A cry, a laugh, a word all the things we normally take for granted, I appreciate. Because I know that things could've been so much different, this post could've been so much different, I could've been so much different.

So to you son, on your second birthday, I would just like to say thank you. You have brought hope, peace, understanding, appreciation and so much more love into our lives.
XOXO, T

Wednesday 16 January 2019

Happy New Year - A look back on 2018

Happy New Year LLE Family. I wish you everything of the best for this new year.

Shoo, time has really flown by. Now I know that I have been M.I.A for quite some time but as you know I had a preemie baby and boy has he kept me on my toes!

I am so happy to report that he is doing great and has exceeded all my expectations.

I have been really focused on the prematurity stuff over the past year, educating myself, lending support and of course raising awareness like there's no tomorrow.

So yes Life, Luv, Everything kind of took a backseat. But with baby boy doing so well I can now start focusing on the blog again full time. (Yay!)

I wanted to start this first blog with all the positive things I was able to accomplish with regards to prematurity. You see when I started this journey I realised that the lack of support for premature families was so prevelant and that no-one was focusing on the well beings of the parents. (I mean healthy, happy mommy and daddy equates to healthy, happy baby). And so I formed the online Support Group Preemie Connect .

Preemie Connect has grown from strength to strength and has opened a whole new world for me.

There were so many people that came together to help me realise my dream of hosting an event for World Prematurity Day 2018. What was supposed to be me going back to the hospital where my baby was born, to gift them with some knitted goodies, turned into 2 wonderful events. I was also very fortunate to have been referred to Selin Bentoom who is based in Ghana and the founder of African Foundation for Premature Babies and Neonatal Care (AFPNC). She has been instrumental in mentoring me and guiding me with making World Prematurity Day 2018 a success.

Many individuals as well as companies jumped on board. Not only were we able to have close on 300 knitted hats,booties and jerseys but we were able to fill up goodie bags with essentials for mommy and baby.

The greatest blessing was being able to go back to the hospital along with my fellow preemie mommies who have been beside me throughout this journey, and speak to the new preemie moms. Gosh it was such an emotional moment but it was the most rewarding and blessed feeling ever. (I'm still on a high from it!!). I also managed to get a Pastor to come in and pray with us and do one on one prayers with some of the moms (and from my personal experience that was such a blessing and so needed at that particular time.)

I also hosted a blood drive. I was amazed by the turn out and even more so, excited to have met a few preemie moms that I have given support to over this year. Coming full circle was so amazing and I am in such awe of these woman and especially the babies. Working with SANBS was so amazing. They made it fun and were so welcoming and friendly.

Through this year there have been many platforms where I have been able to share my preemie story. We were featured on Embrace , Side By Side and most recently in the latest report from the World Health Organisation WHO


So as you can see it has been quite the year for us. I hope you enjoyed this look back on 2018.

In the comments let me know how the past year has been for you and what you wish to achieve in this new year.

Much love
XOXO, T.


Accrediation to all our donors for World Prematuriy Day:
Anjo Wash And Stitch
Bennetts
Noonoo Pie
Mrs Milk
Eucerin
Jeppe High Preparatory School
Bar One
AFPNC